Educational resources
Living with Sjögren's can be overwhelming, especially when reliable information is hard to find. We've created this collection of videos, guides and educational resources to help you better understand the disease, learn about different aspects of care, and access trusted information from healthcare professionals and Sjögren's Australia
Lung Involvement in Sjögren's Disease: In Conversation with Dr John Mackintosh
Lung involvement, including interstitial lung disease (ILD), is one of the topics our community asks about most. In this patient education video, Sjögren's Australia Founding Director and CEO Gavin Marshall speaks with Dr John Mackintosh, Respiratory and Lung Transplant Physician at The Prince Charles Hospital in Brisbane, about what lung involvement in Sjögren's disease means and what patients need to know.
Together, they discuss what ILD is, how it affects people with Sjögren's disease, common symptoms, diagnosis, monitoring, treatment, and practical questions to ask your healthcare team. Dr Mackintosh also answers questions submitted by our community, including lung nodules, exercise, baseline testing and protecting your lung health.
Whether you're newly diagnosed, living with lung involvement or simply want to better understand your risk, this conversation provides clear, expert guidance.
A full transcript and captions are available for accessibility.
This education video was made possible through the support of Boehringer Ingelheim. Sjögren's Australia retained full editorial control of the content. The information provided is general education only and is not a substitute for personalised medical advice. Please speak with your GP or specialist about your individual circumstances.
Patient Self Care Handbook
We're proud to share our patient handbook, Living Better with Sjögren's Disease, a practical guide to managing the day-to-day realities of living with Sjögren's.
Kindly gifted to Sjögren's Australia by the Spanish Sjögren's Association (AES), the handbook has been reviewed and adapted by our Australian Medical Advisory Panel to reflect current best practice and care in Australia.
Inside, you'll find practical advice on managing dry eyes and mouth, oral health, skin care, digestion, medications, pregnancy, daily routines and more, along with a plain language glossary.
Whether you're newly diagnosed or have been living with Sjögren's for years, we hope this handbook helps you feel more informed and confident in managing your condition.
This handbook is for general education only and is not a substitute for advice from your treating doctor. Please discuss your individual circumstances with your GP or specialist.