Navigating Sjögren’s disease in the workplace

Living with Sjögren’s disease can make the workplace a challenge. Fatigue, joint pain, dry eyes, dry mouth, and “brain fog” can affect concentration, energy, and overall performance. But with the right strategies and support, it’s possible to thrive professionally while managing the condition.

1. Communicate Your Needs

Being open with your employer about your condition can help create understanding and flexibility. Consider:

• Sharing how symptoms affect your work
• Suggesting practical adjustments, like flexible hours or regular breaks
• Providing resources from Sjögren’s Australia to explain the condition

Honest conversations can prevent misunderstandings and make the workplace more accommodating.

2. Practical Workplace Adjustments

Small changes can make a big difference:

• Ergonomics: Adjust your chair, desk, or keyboard to reduce joint strain
• Hydration and Snacks: Keep water and safe snacks nearby to manage dryness and fatigue
• Lighting and Screen Breaks: Protect your eyes with screen filters or take short breaks
• Pacing: Prioritise tasks and break larger projects into smaller, manageable steps

3. Know Your Rights

Under Australian law, people with chronic conditions like Sjögren’s may be entitled to workplace accommodations. Key points:

• Employers are required to make “reasonable adjustments” under the Disability Discrimination Act
• Adjustments can include flexible schedules, remote work, ergonomic equipment, or extra breaks
• Keep documentation from your healthcare provider to support your request

Being informed empowers you to advocate for what you need.

4. Self-Care Strategies

Managing energy and stress is crucial:

• Use rest periods strategically to avoid burnout
• Practice mindfulness or stress-reduction techniques
• Keep realistic expectations and pace yourself

5. Leverage Community Support

Connecting with others who understand the challenges of Sjögren’s can provide encouragement and ideas. Sjögren’s Australia offers resources, community networks, and information about clinical trials that can improve care. Sharing your experiences can also help raise awareness among employers and colleagues.



Final Thoughts

Navigating Sjögren’s in the workplace is about preparation, communication, and self-care. By understanding your rights, using practical strategies, and connecting with supportive communities, you can maintain your career while managing your health.